Thanks for taking the time to visit my JustGiving page.

I am running the Great North Run in memory of little baby Alexis, I had never heard of Spinal Muscular Atrophy let alone that it was the leading genetic killer of infants and toddlers. Please take a moment to read Alexis's story.

In 2015 our dear family friend Xanthe gave birth to her dream baby boy,  Xanthe really had dreamt two years previously, that she would give birth to a little boy and call him Alexis! He really was the cutest little boy you have ever seen. He was perfect and Alexis completed their family of three, Alexis had two beautiful older sisters, the family was so happy. All was well until around two months old Xanthe noticed he wasn't moving his arms so well and went to the doctors thinking he may need some physio. After being referred to the local hospital and blood tests the family were told little Alexis had Spinal Muscular Atrophy type 1.

 Unfortunately this is a terminal condition with a short life span, there is no cure at present. Only 10 days later he was admitted to hospital with a chest infection, Alexis became weaker, his little muscles too weak to eat or cough properly. Mum & Dad had to learn how to suction him and feed him by an NG tube.Periods of hospital admissions and being at home followed. His condition continued to worsen and he spent time at Acorns Hospice, the hospice accommodated mum, dad and the girls and tried to make life as normal as it could be.

Throughout all this little Alexis continued to smile and bring joy to the family, you can see in his photos just how sparkling his eyes were and his gorgeous smile.

Sadly Alexis passed away on November 2nd 2015 aged just 7 months old.

The SMA Trust are dedicated to finding a cure and treatments for Spinal Muscular Atrophy, please help me raise money for this important work. In memory of the beautiful little Alexis. 

Thank you for reading his story Carol XXX