Charlotte's Story...........

My name is Charlotte and I am 4 years old. I was born 8 weeks early with my twin brother Daniel. I had a bleed on my brain which was found shortly after birth which has caused quadriplegic cerebral palsy.
For the first few months of my life I moved from hospital to hospital and had lots of feeding difficulties which resulted in me having to have a gastrostomy tube fitted to help me feed.
Daniel was meeting all his milestones and I have been left behind and cannot sit up unaided, crawl or walk. It has been devastating for my mum and dad to watch Daniel progressing whilst I struggle with the simplest of tasks. I find it very difficult to play with my twin brother as he is running around getting into mischief and I get very frustrated that I can't do what he is doing. My arms and legs are very stiff and this makes it very difficult for me to control.
My mum and dad are trying to help me in every way they can and we do lots of physiotherapy together everyday and a targeted training program to help me improve my sitting balance.
My mum and dad have been researching an operation which they hope will help me in the US called SDR. This operation is available at St Louis childrens hospital where Dr Park has specialised in this field for over 25years and has helped thousands of children to walk. Their aim is to raise funds to enable them to take Me to meet Dr Parks and hopefully benefit from this operation and give me every opportunity they can so I can achieve my full potential.
 I also need specialist equipment to help me with everyday life and to ensure I can join in with my twin brother and friends.


Please help me to dance with Daniel. Thanks for taking the time to visit my JustGiving page.

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