Steve Mccarthy

Steve's page

Fundraising for Reverse Rett
£1,826
raised of £2,000 target
by 57 supporters
Donations cannot currently be made to this page
Event: Virgin London Marathon 2016, on 24 April 2016
Reverse Rett

Verified by JustGiving

RCN 1136809
We 're working to bring treatments for Rett Syndrome home

Story

Thanks for taking the time to visit my JustGiving page.

As you may know I managed to get one of twelve spaces in the ballot for the London marathon as a non elite wheelchair user (I shall be completing the course in my standard day chair).

I have decided to raise money for Reverse Rett in aid of Lily (Hope for Lily on Facebook).  Reverse rett is a charity which works to speed treatments and find a cure for Rett Syndrome.

Rett Syndrome is a neurological or brain disorder which most often affects apparently healthy little girls around the age of 6-18 months.  Onset can be sudden or more subtle.  The condition usually follows a path of progression, where skills such as speech, hand use and mobility are lost. Most girls do not speak at all. Some have a few words. Some are left with some hand use. Some girls never walk, some girls learn to walk and lose it later and a few keep walking. There is no way to predict the severity of these different symptoms.

Thank you for any donation you have made!

Steve

About the charity

Reverse Rett

Verified by JustGiving

RCN 1136809
Reverse Rett is a patient advocacy and research organisation focused on delivering treatment for Rett Syndrome to all affected. Read more here: reverserett.org.uk For Rett Registry UK: https://www.rettregistry.uk/

Donation summary

Total raised
£1,825.56
+ £316.50 Gift Aid
Online donations
£1,825.56
Offline donations
£0.00

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