In 2013 baby Abigail was diagnosed with spinal muscular atrophy. SMA type 1 has an average life expectancy of just 8 months. During her life Abigail Sheila touched more hearts than most of us in an entire lifetime. She smiled every day and even when she was severely ill laughed and was happy.

ABOUT SMA

SMA is a genetic neuromuscular disease, which means it is inherited and affects nerves responsible for muscle function. Although classified as rare, SMA is the leading genetic killer of infants and toddlers, with approximately 95% of the most severely diagnosed cases resulting in death by the age of 18 months. Children with a less severe form of SMA face the prospect of progressive muscle wasting, loss of mobility and motor function.

1 in 40 to 60 people is an SMA carrier, i.e. approximately 1.5 million people in the UK

1 in every 6,000 to 10,000 births is affected by SMA. At any one time, it is thought that there are between 2,000 and 2,500 children and adults in the UK living with SMA.


Thanks for taking the time to visit my JustGiving page.

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity. So it’s the most efficient way to donate – saving time and cutting costs for the charity.