Thank you for visiting our page.

Due to the number of people who are unable to attend the band night on 26th November but who expressed a wish to donate we have set up this just giving page so that Reverse Rett will receive your donation quickly and securely.

We have chosen to support Reverse Rett this year after hearing about the journey of Louisa’s god-daughter, Lily Hall, who shortly after her second birthday was diagnosed with Rett Syndrome. A tiny mutation to a single gene that has condemned her to a life of profound disability and total dependence.

Until her first birthday, Lily was like any other little girl - happy, loving and desperate to explore the world around her.  Then things started to change - she lost her speech and her interest in life. Lily was in pain physically and emotionally and her family were not being given any answers.

Sadly a diagnosis of Rett Syndrome means that Lily is locked inside her body, unable to communicate and faces the prospect of epilepsy, severe spinal curvature, life-threatening breathing problems, feeding difficulties and attacks of acute anxiety.

But there is hope. Rett Syndrome has been reversed under laboratory conditions and scientists predict that it will be the first curable neurological disorder.

The only thing holding back a cure is money and researchers are wholly reliant on private donations from people like us.  Reverse Rett is a charity working to accelerate treatments and cures for Rett Syndrome and related MECP2 Disorders.