Beth Johnsson

Hike 4 Hope

Fundraising for Reverse Rett
£805
raised of £500 target
by 34 supporters
Donations cannot currently be made to this page
Reverse Rett

Verified by JustGiving

RCN 1136809
We 're working to bring treatments for Rett Syndrome home

Story

Rett Syndrome affects 1 in 10,000 girls. That doesn't sound like a lot, does it? But it is one too many. Amber, Amelia, Rianna and Hannah each got those odds. Their parents never imagined that their daughter would be the 1 in 10,000, but she was. 

Hike 4 Hope is inspired by 4 beautiful girls, whose parents all believed their daughter would continue to develop healthily and normally. Four mums who looked forward to hearing their daughters' voices, watching their first school play, sharing shopping trips and secrets. Four Dads who dreaded the first boyfriend, the late nights out and the taxi service required, but hoped, one day, to walk her down the aisle. We all just imagined our daughters would grow up. 

On 6th September we are joining together to walk around the beautiful nature trails of Box Hill National Trust property in Surrey, to help raise money for Reverse Rett. 97 pence out of every £1 raised goes to research, and research is what will give our girls a future in which they are allowed to grow up. 

Please either join us for the day, by adding the ticket cost to this page and stating how many tickets you would like, or simply support us by making a donation of your choice. 

Tickets are £5 per adult, £3 per child (aged 2-16 years), or £12 for a family ticket (2 adults and 2 children).

Please remember, if you are buying a ticket, you cannot tick the gift aid box. If you are only making a donation, you can :)

We will be meeting at Box Hill in front of the cafe at 13.30, and starting our afternoon amble around 13.45. Please BYO picnic, we will be sharing around some home made cakes as well. 

For more information about this event, please contact bethreverserett@gmail.com

or for more information about Rett Syndrome and Reverse Rett, please visit www.reverserett.org.uk




About the charity

Reverse Rett

Verified by JustGiving

RCN 1136809
Reverse Rett is a patient advocacy and research organisation focused on delivering treatment for Rett Syndrome to all affected. Read more here: reverserett.org.uk For Rett Registry UK: https://www.rettregistry.uk/

Donation summary

Total raised
£804.29
+ £128.50 Gift Aid
Online donations
£704.29
Offline donations
£100.00

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