Angelina Mills

Angelina's Page

Fundraising for Sturge Weber UK
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Event: Sponsored Skate
Sturge Weber UK

Verified by JustGiving

RCN 1016688
We provide information & raise awareness to support families and children with SWS

Story

Hi - My name is Angelina Faith Mills and I am 6 years old. For those of you who dont know me I was born with a very brain disorder called Sturge Weber Syndrome, for the 1st year of my life I suffered with daily uncontollable seizures and episodes that left half of my body weak (typical appearence of a stroke) I couldnt do many of the things other children my age could do and all I wanted to do was sleep due to the seizures taking all my energy! On June 24th 2010 at Great Ormond Street Children's Hospital I underwent a very serious brain operation known as a Hemispherectomy - this involved dissconecting the right side of my brain and removing some parts to alleviate the seizures that medication wouldnt, I spent 7 hours in surgery followed by a further 7 days in hospital.

Throughout the last 5 years I have been seizure controlled and no longer require daily anti-epileptic medication like I did before my operation, I still and always will have to work that extra bit harder than anybody else, I cannot use my left hand for any motor skills what so ever and have very limited mobility in my left arm and left leg, I have lost all my vision in the left side of both my eyes and continue to attend many hospital and thearpy appointments but.... I will not let my disabilites get in the way of what I want to do.

On 24th August 2015 I shall be taking part in a 3 hour sponsored skate for Sturge Weber UK - a registered charity who have supported me and my family throughout my journey so please sponsor me what ever you can or come and join me www.justgiving.com/teams/skate4angelina

Thanks for taking the time to visit my JustGiving page with love from Angelina x

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About the charity

Sturge Weber UK

Verified by JustGiving

RCN 1016688
Sturge Weber UK inspires to promote research and share knowledge to empower individuals diagnosed with Sturge Weber Syndrome and their families and carers. Giving strength to create a supportive, inclusive and caring community whilst raising both public and professional awareness.

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