Story
I'm
doing the Race for Life this year in memory of Daisy Brooks, and I
hope to raise £150 for Funding Neuro. Lets do it for Daisy!
On
the 3rd of May 2014 the Brooks family received devastating news,
their beautiful 6 year old daughter Daisy was diagnosed with an
incurable DIPG brain tumour.
Daisy
went from being a normal child at school one day with no sign of
illness to hospital the next and was having radiotherapy by the
following week.
At
the time, Daisy’s parents, Louis and Anna, were told that there was
no hope of a cure but that radiotherapy would buy a little extra time
to make precious memories with their daughter and that if they were
lucky they could expect a few weeks of ‘good health’ before the
symptoms took hold and their little girl would start to slip
away
Daisy’s
family and friends scoured the internet looking for some treatment
that could help her. Like many parents in this desperate situation,
they would have done anything, gone anywhere to help their beloved
child but they found an answer right here in the UK in the brilliant
Professor Steven Gill who was based in Bristol and had been
researching innovative methods for treating neurological disorders
like DIPG for over ten years. On July 28th 2014, Daisy and her family
travelled to Bristol where she underwent pioneering brain surgery
aided by a software guided robot to install a series of catheters
attached to a titanium device made on a 3D printer which could be
used to deliver chemotherapy direct to the tumour. Daisy’s bravery
has enabled a huge step forward in finding a cure for DIPG.
Daisy’s
parents, family and friends continue to raise funds to be used by
Professor Gill to continue the research and study that has enabled
Daisy to be a pioneer in finding a cure for DIPG which will continue
to benefit children and families in the future given what has up
until now been an unequivocal death sentence.
Beautiful
Daisy got her Angels wings at 3.20 am on 17th November 2014. She past
away having spent her 7th birthday the day before surrounded by loved
ones and left in peace shortly afterwards.
Her
dignity and bravery has helped to pave the way in pioneering a cure
for DIPG brain cancer. We will not stop raising awareness of this
condition or funds to help find that cure to help the children and
families so unfairly affected by this cruel illness.
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