Thanksfor taking the time to visit my JustGiving page.

Layla Violet wasborn on the 28 March 2014, a beautiful little girl and daughter to Sophieand Rob.

Sadly, some weekslater she was diagnosed with SMA Type 1 (Spinal Muscular Atrophy). SMAis a devastating disease and is the leading genetic killer of infants andtoddlers.

Type 1 is the most common form of SMAand the most severe. Symptoms are usually apparent at birth, or during thefirst few months of life. Weakness is severe and manifests itself indifficulties moving, eating, swallowing and breathing. The proximal muscles, ormuscles closest to the trunk such as the neck, shoulder and pelvic girdlemuscles, are most significantly involved. SMA Type 1 babies have floppy limbsand tongue fasiculations (flickering). Due to the high risk of seriousrespiratory problems, most children with this type of SMA die before theirfirst birthday.

Layla was a happy little girl with a wonderfulsmile that melted the heart. Sadly at 7 months of age our hearts were broken when she passed away in her mother’s arms.

We opened this Just Giving page in hername “Layla’s Smile” to raise monies for The SMA Trust and for Rainbows Hospicefor Children and Young People.

We will continue toorganise events to raise funds for charity.

Your kind supportwould be greatly appreciated.