Thanks for taking the time to visit my JustGiving page.

Romi is a beautiful wee girl affected by Rett, a rare neurological condition. Everyday Romi and her family have to cope with the symptoms of Rett, which include the loss of speech, limited mobility, breathing difficulties and epilepsy, to name but a few.

As it is rare Rett doesn't attract much in the way of funding for research and that is where we can help.

To read a bit more about Romi and Rett have a read of her mum's blog

http://rettisa4letterword.wordpress.com/

No ice bucket challenge required. ...Just me trying to run a half marathon.

Your donation can make a difference.

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