Benjamin Faes
Benjamin's The Duchenne Dash page
Fundraising for Duchenne UK
Story
Thank you for visiting my page.
I have signed up at the very last minute for this grueling ride to Paris, specially for someone who hasn't been on a bike in over 6 years!
I have been supporting the Duchenne Children's Trust for many years now as a friend of my eldest daughter is carrying the disease.
This is a terrible genetic disorder which blocks the production of dystrophin, a protein necessary for muscle survival and as a result, every skeletal muscle in the body deteriorates. At the moment Duchenne Muscular Dystrophy is 100% fatal with no cure; most children die in their early 20’s from heart or respiratory failure and every child ends up in a wheelchair by the age of 12-14.
With sufficient funding, scientist believe they can end this disease in 10 years.
I have signed up at the very last minute for this grueling ride to Paris, specially for someone who hasn't been on a bike in over 6 years!
I have been supporting the Duchenne Children's Trust for many years now as a friend of my eldest daughter is carrying the disease.
This is a terrible genetic disorder which blocks the production of dystrophin, a protein necessary for muscle survival and as a result, every skeletal muscle in the body deteriorates. At the moment Duchenne Muscular Dystrophy is 100% fatal with no cure; most children die in their early 20’s from heart or respiratory failure and every child ends up in a wheelchair by the age of 12-14.
With sufficient funding, scientist believe they can end this disease in 10 years.
Our target with 124 other riders in the event is to raise £500k, I hope to raise at least £3k. Everything you generously sponsor me with, Google will match.
Thank you for your support,
Benjamin