Pauline Marston-Grimley

Pauline's page

Fundraising for Reverse Rett
£4,114
raised of £1,500 target
by 80 supporters
Donations cannot currently be made to this page
Reverse Rett

Verified by JustGiving

RCN 1136809
We 're working to bring treatments for Rett Syndrome home

Story

Thanks for taking the time to visit my JustGiving page.

My big bike ride will be in aid of British Heart Foundation, who organise the ride, and Rett Syndrome Research Trust.  The first £500 goes to BHF and the remainder to RSRT and this page is dedicated to RSRT.  Click this link for my special BHF page.  

RSRT arrived uninvited into our lives when my little niece, Lauren, was diagnosed with this horrible condition three years ago, leaving her unable to walk, talk, express herself or use her hands properly (as well as lots of other horrible symptoms) even though she obviously understands a lot.  You can read more about Rett Syndrome here .  A depressing read, however in the last 12 months research for the disease has seen incredible steps forward, providing the potential to finally give Rett families the news they are desparately waiting to hear -that they have the choice to help their daughters be better, that there is a cure. 

This year Lauren's mum, Helen, turned 40 and has launched The Fabulous 40 fund raising challenge, whereby 40 friends and relatives (in fact now heading towards 50) have all pledged to raise funds for RSRT.   My fund-raising is linked to this challenge.  

Ive also started a blog following my training and preparations  - you can see it here

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer. So it’s the most efficient way to donate - I raise more, whilst saving time and cutting costs for the charity.

So please dig deep and donate now.

About the charity

Reverse Rett

Verified by JustGiving

RCN 1136809
Reverse Rett is a patient advocacy and research organisation focused on delivering treatment for Rett Syndrome to all affected. Read more here: reverserett.org.uk For Rett Registry UK: https://www.rettregistry.uk/

Donation summary

Total raised
£4,113.74
+ £458.28 Gift Aid
Online donations
£3,983.74
Offline donations
£130.00

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