Thanks for taking the time to visit my JustGiving page.

Rett syndrome is a rare and very severe neurological disease which almost exclusively affects girls. My niece Dylan was diagnosed with Rett syndrome about a year ago. Dylan developed like any other little girl until the age of one - crawling, playing and saying a few words. She can no longer walk, talk or use her hands and she will face further challenges in the future. Most girls with Rett Syndrome will end up in a wheelchair being fed through a tube. Life expectancy is poor.

 

Dylan is not alone - every 5 hours a girl is born with Rett Syndrome.

 

Recent research has given hope that a cure is possible. 

The below web link gives more details about my niece and the latest developments in the search for a cure. 

http://www.curefordylan.com

 

I am not a runner and have not run more than 4 miles before but both my wife (Joanne) and I are going to be running this year to raise funds.

 

We are starting with a 10k run in July followed by the half-marathon in September.

Any donations would be much appreciated.

 

Phil

------------------

 

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer. So it’s the most efficient way to donate - I raise more, whilst saving time and cutting costs for the charity.

So please dig deep and donate now.