On Friday 21st June, I will be walking with colleagues, clients and friends, a marathon route around London in support of The Brain Tumor Charity and specifically towards the PNET5 trial. 

As you may know, my colleagues son, Alex, was diagnosed with Medulloblastoma (a type of Brain Tumour) in September 2017 aged 3.5 years. 

Alex survived an emergency 8.5 hour brain operation and has had a further 12 months of chemotherapy and at one point 6 weeks of daily radiotherapy under general anesthetic. 

Medulloblastoma is the most common pediatric brain tumour, but as treatments have to target the whole of the brain and spinal cord, they are aggressive and can leave long term, life altering disabilities for children who survive. 

Through the care Alex has been receiving at GOSH, UCLH and Watford hospitals, the Hobbs family made the decision to allow Alex to join a Europe wide treatment trial called PNET5. 

Alex is the first child in the UK on the PNET5 trial. 

Part of PNET5 aims to prove that children can benefit from a different treatment regime that results in fewer immediate side effects and reduced risk of critical long term disabilities, without any negative impact on length of survival. 

Please join us, or sponsor me if you can. We hope that the PNET5 trial will advance our knowledge of Medulloblastoma Brain Tumours and improve treatment for children into the future, whatever the outcome for Alex.