Alison Ure
Alison's page
Fundraising for Reverse Rett
Story
Thanks for taking the time to visit my JustGiving page.
As most of you know, I don't normally need any reason to go for a long walk however this time it's different and it would be amazing if you could help support in any way you can.
Rett syndrome is a neurodevelopmental condition that strikes previously healthy little girls between their first and second birthdays, leaving them with multiple disabilities and medical complexities for life. This happen to my friend Rita's daughter, Frankie.
Every day offers a real challenge to Frankie but she loves to swim, laugh and play like any other young girl. She also likes to go horse-riding and even enjoys school but most of all she would love to be able to talk. If you'd like to read more about our inspirational Frankie, please visit www.findacureforfrankie.co.uk.
Reverse Rett is a fantastic charity that aims to not only supports those living with Rett Syndrome but ultimately one day find a cure. If you want to know more about the charity, please visit www.reverserett.org.uk
Thank you all in advance xxx
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