Beth Johnsson

Beth's Sole Mates Walk for Hannah

Fundraising for Reverse Rett
£1,033
raised of £500 target
by 34 supporters
Donations cannot currently be made to this page
Event: London to Brighton Challenge 2019, from 25 May 2019 to 26 May 2019
Reverse Rett

Verified by JustGiving

RCN 1136809
We 're working to bring treatments for Rett Syndrome home

Story

If you know me or my family, you'll already know why I'm doing this and why we will continue to take on challenges and ask for your support until we have reached our ultimate goal: a cure for Rett Syndrome - freedom for Hannah and for all those also trapped by the devastating effects of Rett.

But this is not just me, this is a team event. It is a walk in honour of others, with whom we have walked before and whose journeys we have partly shared, whose daughters have tragically  lost their battles with Rett. It is a sorrow and a grief which I cannot begin to imagine and which I can only, selfishly, hope I will never have to bear.

But I can do so much more than hope. I can take action. I can play my part, however small and insignificant that may seem, and I can help to make change happen. On 25th May, I can walk.

If you feel able to sponsor me, thank you. If you don't, that's okay too. Please just send some words of encouragement, share my posts, let others know about Rett Syndrome and the work that we do to take us closer to that cure. It all helps. 

To find out more about the walk and the girls who have inspired it, please take a read of this blog post from Reverse Rett Director, Rachael Stevenson:

https://www.reverserett.org.uk/solemates-walk/

Thank you x 

About the charity

Reverse Rett

Verified by JustGiving

RCN 1136809
Reverse Rett is a patient advocacy and research organisation focused on delivering treatment for Rett Syndrome to all affected. Read more here: reverserett.org.uk For Rett Registry UK: https://www.rettregistry.uk/

Donation summary

Total raised
£1,032.28
+ £203.75 Gift Aid
Online donations
£1,032.28
Offline donations
£0.00

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