Story
We have signed up to this with friends and to support this amazing cause.
See a little bit about Daisy's story and the trust below).
DIPG is a rare brain disorder, mostly affects children, and the average life expectancy after diagnosis is just six to twelve months.
The CED treatment used by Daisy was pioneered by Professor Steven Gill and his team in Bristol. CED requires surgically implanting 3D-printed micro catheters into the brain, which then deliver chemotherapy directly into the tumour.
This experimental surgery gave Daisy a chance to treat DIPG, gain a much improved quality of life and a few more precious months with her family. Sadly, and owing to the current inevitability of the disease, Daisy passed away aged just seven-years-old.
Following Daisy’s passing, the Brooks formed the Do It For Daisy Trust. To date, the organisation has fundraised over £300,000 and helped transform the future for all children with childhood brainstem tumour DIPG. The inspirational Brooks family and their friends and colleagues have raised the money to run a clinical trial that will make Professor Steven Gill’s CED system available for the next generation of children who need it.