Story
Thanks for taking the time to visit our JustGiving page. We are taking part in the Caring Matters Now trekking challenge...to trek 25 miles along Hadrian's Wall in just one weekend! We start at Lanercost Priory on Friday evening and finish on Sunday in Brocolitia, camping out along the way!
We would appreciate any donation, big or small which will go directly to Caring Matters Now, a cause we are both passionate about.
Caring Matters Now was initially set up in 1998 by Amy's sister, Jodi, who at the time was a 17 year old patient at Great Ormond Street Hospital with extensive Congenital Melanocytic Naevus (CMN). Jodi and her family provided support to those similarly affected by the condition. It was clear that those with CMN and their families were in desperate need of accurate information, advice and contact with others affected by the same disorder.
Today, the CMN support group has over 300 families registered and 11 UK regional support contacts in operation. A small team of those with CMN and parents of children with CMN run the support group which is
now a registered charity with the UK Charity Commissions. The charity primarily covers those living in the UK but is also happy to provide support and information to families living internationally.
The charity has three main aims which are:
- To support those affected by CMN
- To raise awareness about CMN
- To raise funds for the CMN research
We are funding the cost of the challenge ourselves so therefore 100% of your donation will go to the charity.