Ricci Hannah

Ricci's Arch to Arc - 24 hour challenge

Fundraising for Transverse Myelitis Society
£1,791
raised of £3,000 target
by 69 supporters
Donations cannot currently be made to this page
Transverse Myelitis Society

Verified by JustGiving

RCN 1108179
We provide info & support & raise awareness to help people with TM and their families

Story

Hi there,

Introducing Team Arch to Arc: Ricci and Ravi Hannah, Caitlin Smyth, Alex Zylko, Emma Shaw, Mark Stanton, Jack Wilson and Katie Lewis. We've all joined together to do a 24 hour charity cycle from Marble Arch to Arc De Triomphe. Please read below to find out which charity we're raising money for and why.

Carol Hannah is the mother of two of our riders, Ricci and Ravi, and she is disabled. She suffers from a rare neurological condition called Transverse Myelitis (TM) where lesions form on the spinal cord and for which there is no cure. It's symptoms are similar to Multiple Sclerosis and include extreme fatigue and weakness. For Carol however, the disease is rather more debilitating. The position of the lesions means that she has no sensations of touch or of hot and cold from the neck down and this has led to a number of emergency hospital visits. She has no proprioception (awareness of where her joints are) and this coupled with the fatigue means that she falls over regularly. On top of this, she suffers from chronic pain and from restless leg syndrome and so can often be awake for well over 30 hours before she is able to sleep.

Carol was forced in to medical retirement and has to live with the stigma of being disabled for the rest of her life. The myriad of physical complications have had a profound effect on her ability to participate in society and this has had an huge impact on her mental health. Just like other sufferers, their mother doesn't speak out about what she's going through and so we're doing this challenge to raise money for Transverse Myelitis Society to give people like Carol a better quality of life and to raise awareness of TM.

We're cycling from Marble Arch to Arc De Triomphe in 24 hours for Transverse Myelitis Society because they offer support for sufferers of TM and their carers. Your money will go towards:

> providing sufferers with Life Coaching and Cognitive Behavioural Therapy (CBT) to help sufferers set goals and enable them to live as a full a life as possible

> bursaries for specialist neurophysiotherapy, which has been shown to reduce levels of fatigue and improve quality of life

> family days and support group meetings where specialist guest speakers educate families and where sufferers and carers can meet for a day of activities that break up the monotony of living with this disease.

The pain we'll go through will be temporary. The pride we'll have after our efforts will be permanent. This is all for Carol and those with TM.

Wereally hope you see the value of this charity and that you can chip in, every little helps and all that.

Thanks for reading. x

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About the charity

Transverse Myelitis Society

Verified by JustGiving

RCN 1108179
The TM Society provides information and support to over 2000 people living with Transverse Myelitis, their families and carers in the UK, and those with other rare auto-immune neurological conditions, ADEM and NMO (Devic's disease). It's affiliated with the worldwide Transverse Myelitis Association.

Donation summary

Total raised
£1,790.12
+ £303.75 Gift Aid
Online donations
£1,790.12
Offline donations
£0.00

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